55 Episoder

  1. Alan Thomas is a patient engagement advocate for rare diseases in general and Ataxia

    Udgivet: 12.4.2018

  2. Want to be involved in the Ataxian PROM?

    Udgivet: 11.4.2018

  3. Cindy DeMint support Group leader making a different

    Udgivet: 9.4.2018

  4. Joel Sutherland with DYK

    Udgivet: 8.4.2018

  5. Megan Kaiser discovering latest research.

    Udgivet: 6.4.2018

  6. Harry Orr about discovering the first Ataxia gene and his latest research. Live at #2018AAC

    Udgivet: 5.4.2018

  7. Tips for first time attendees to the Ataxia Conference

    Udgivet: 23.3.2018

  8. Keeping a Medical Binder

    Udgivet: 11.3.2018

  9. Ataxia Suport Groups They get me !

    Udgivet: 2.3.2018

  10. Did You Know Suport Groups are extended family and friends

    Udgivet: 23.11.2017

  11. Did You Know about research

    Udgivet: 23.11.2017

  12. Did You Know ? National Ataxia Foundation believes that this type

    Udgivet: 16.11.2017

  13. Did You Know? invisible aspects of Ataxia

    Udgivet: 20.9.2017

  14. Did You Know ? Annual Ataxia Conference (005)

    Udgivet: 12.9.2017

  15. Did You Know Podcast - Episode One

    Udgivet: 31.8.2017

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Curious, knowledgeable wife of an Ataxian. My mission is to share reputable Ataxia information in short, simple, digestible servings. I want the world to become acquainted with Ataxia and the way it robs someone of their balance, coordination, ability to walk, talk, swallow, and see.

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